From Suffering to Compassion: Transforming Life with ME/CFS

Living with chronic fatigue syndrome (ME/CFS) often feels like carrying an invisible weight that never goes away. The exhaustion is far beyond ordinary tiredness, permeating not just the body but the mind and heart as well. For many of us, this illness can feel like a curse, a complete derailment of life’s trajectory. Yet, over the years, I’ve come to see it also as a strange and unexpected blessing—one that has thrown me deeper into spiritual practice, into moments of stillness and contemplation I might not have otherwise known.

At its worst, the illness can leave me in bed, lights off, no sound, in a state of complete sensory deprivation. And it is in these moments, when there is nothing to distract me from my thoughts, that I’ve had to learn how to truly be alone. Learning to witness my reactions, cultivating equanimity, and practicing calm-abiding meditation have become vital companions on this journey. For many years, I focused on the Tibetan practice of Samatha, or calm-abiding meditation, as well as Vipassana, which allows for a deep awareness of the present moment. Sitting in stillness, aware of whatever calm I could find within, helped me cultivate equanimity—though it remains a practice I still have much to learn from.

But there was another essential practice that transformed how I related to my suffering. The practice of Metta—or loving-kindness—invites us to take our own pain and suffering and recognize that in this vast world, we are not alone in what we feel. When my illness has been most acute, whether through mental anguish or physical symptoms, I’ve practiced thinking: In the same way that I am experiencing this illness, this suffering, this pain, there are others in the world who experience this too. And then, from the heart, I offer the prayer: May I, and all beings, be free from this suffering and its causes.

This simple yet profound shift in perspective allowed me to transform my experience from one of isolation and misery into a practice of compassion. Instead of being stuck in my own pain, it became a way to benefit others by cultivating loving-kindness for all those who suffer. In this way, even my most difficult experiences became part of my spiritual path. ME/CFS was no longer just an illness—it was an opportunity to deepen my compassion, both for myself and for others.

Of course, this hasn’t been an overnight transformation. It took many years of spiritual study and practice, drawing from teachings like the Four Noble Truths of the Buddha, the Noble Eightfold Path, and eventually the teachings of Advaita Vedanta. Through these teachings, I came to recognize the fluctuations of the mind, or vrittis, and learned to observe the content of my thoughts—pratyayas—without identifying with them. This practice of witnessing the mind has allowed me to find peace in the midst of the storm, much like the Dark Night of the Soul described by St. John of the Cross.

For me, it has felt less like a dark night and more like twenty years of spiritual darkness, but nonetheless, this darkness has also been a teacher. Learning to be present with my suffering, rather than resisting it, has become an integral part of my life with ME/CFS. And while the illness has forced me to withdraw from many aspects of life, it has also drawn me into the heart of spiritual practice.

To anyone living with this illness, or any chronic illness, I offer this: it’s okay to feel overwhelmed by the weight of it all. It’s okay to grieve the life you once had or the future you imagined. But there are also practices—like Metta, calm-abiding meditation, and witnessing the mind—that can transform this suffering into something that nourishes not only your soul but the souls of others as well.

May you, and all beings, be free from suffering and its causes. May this invisible weight become a doorway into the mystic, where even in solitude, you find that you are never truly alone.

🙏🕊️🙏