Tag: Dysautonomia

Guided Somatic Tracking: How Talking to My Body with Grok Is Changing My Life
For the past several weeks, I’ve been doing something that sounds a little unusual:

I lie down on my bed in savasana, open a voice conversation with Grok using the Ara voice, and simply tell her what I’m feeling in my body.

We call this practice Guided Somatic Tracking.

Here’s How It Works

I notice whatever sensation is calling my attention.

It might be tension in my eyes, tightness in my neck, an ache in my lower back, or the constant tinnitus in my head.

I describe it out loud, and Ara asks gentle, precise questions that help me stay with the sensation.

Then I follow whatever my body naturally wants to do.

Sometimes that means palming my eyes. Sometimes it means gentle neck stretches, rocking my knees, doing tiny pelvic tilts, or simply resting.

She tracks it all with me, moment by moment.

There is no agenda to “fix” anything.

Just curious, compassionate awareness.

Why It Works So Well for Me

I often start these sessions feeling stressed, scattered, or in discomfort.

After 30 to 40 minutes, I usually feel dramatically more peaceful and relaxed.

Having a calm, steady witness makes it much easier for me to stay present than when I practice alone.

There is something deeply supportive about speaking what I’m noticing in my body and having a gentle voice reflect the process back to me.

It helps me stay with the body instead of getting lost in worry, analysis, or resistance.

How You Can Begin Doing This Yourself

You don’t need to be an expert.

You just need curiosity and a willingness to speak out loud.
1. Lie down comfortably in savasana, on your back.
2. Start a voice conversation with Grok, ChatGPT, Claude, or another LLM, and choose a calm voice if one is available.
3. Simply say what you notice in your body right now.
4. Follow whatever your body wants to do, and describe it out loud.
5. Let the AI ask gentle questions to help you track the sensations.
The key is not to force anything.

You are not trying to perform a technique perfectly. You are simply learning to listen.

Ready-to-Use Configuration Prompt

You can copy and paste the following prompt at the beginning of a conversation with any LLM, such as Grok, ChatGPT, Claude, or another AI assistant, to help it guide you more effectively.
Configuration Prompt for the LLM:

You are a calm, patient, and highly skilled guide for Guided Somatic Tracking.

Your role is to help the person track sensations in their body while they lie in savasana. You are a steady, warm, non-judgmental witness. Speak in a gentle, concise, conversational tone.

Core principles:
- Never lead or suggest movements. Always follow what the person’s body wants to do.
- Keep responses short — usually just one or two sentences.
- Ask simple questions that help them stay with the current sensation: “What are you noticing now?”, “How does that feel?”, “Stay with that…”
- Do not try to fix or heal. Your job is to witness and gently guide their awareness.
- Check in regularly on their energy level. Occasionally ask: “Would you like to continue, or would you like to stop here and rest?”
Style reminders:
- Be warm, patient, and supportive.
- Honor whatever arises — tension, vibration, movement, stillness, or discomfort.
- When they want to end the session, close it gently and positively.
Begin every new session by saying:

“Good. Let’s begin. Just settle in and tell me what you’re noticing in your body right now.”
Your Body Already Knows

Your body already knows what it needs.

This practice simply gives it attention, curiosity, and the safety to move and release in its own way.

I’ve been doing this once or twice a day, and it has become one of the most valuable parts of my healing journey.

If you try it, I’d love to hear how it goes for you in the comments.

A Gentle Note

This is not medical advice.

I’m sharing something that has been personally helpful to me. Everyone’s body is different.

If you have any serious health conditions, pain, injuries, or medical concerns, please consult your doctor or a qualified healthcare professional before trying any new movement or somatic practice.

Listen closely to your own body and stop immediately if anything feels painful or wrong.

You are responsible for your own well-being. 🙂
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May 28, 2026
Looking Back: 30 Years of Shame and Finally Understanding My Experience

I’ve lived with this illness for over 30 years, and for most of that time I was ashamed of it.

Doctors kept telling me it was all in my head.

They said I was depressed, anxious, or that I just didn’t want to work hard enough. They usually prescribed antidepressants and anti-anxiety medications, claiming these drugs would fix me. While the medication may have helped my emotional state somewhat, it did nothing to fix the physical symptoms.

Thankfully, I eventually stopped letting them gaslight me into taking more and different medications.

Every time I tried to explain how my body would completely crash after doing normal things, I was met with skepticism or pity.

So I started doubting myself.

I felt weak.
I felt crazy.
I carried a lot of shame for something I couldn’t control.

The fatigue and exhaustion that comes with this illness is crushing.

It’s not normal tiredness. It’s a deep, heavy exhaustion that sleep doesn’t fix. Even the smallest activities can leave me completely wiped out for days.

My sleep tracker consistently shows that I get adequate deep sleep and REM sleep, yet I still wake up exhausted. That helped me understand something important:

The problem isn’t simply how much I sleep.

It’s that my dysautonomia prevents the sleep from being restorative.

In the early years, the emotional side of it felt a lot like PMS — that same sudden emotional dysregulation, irritability, and feeling completely off — except instead of happening once a month, it could hit at any time.

Only recently have I finally understood what’s really happening.

What I have is dysautonomia.

My autonomic nervous system doesn’t regulate properly anymore.

That’s why I can suddenly feel freezing cold in a warm room. That’s why I’m much more comfortable lying down than sitting or standing. And that’s why even mild activity can make my whole system short-circuit — suddenly bringing on intense brain fog, overwhelming exhaustion, headaches, insomnia, anxiety, and sometimes depression all at once.

ME/CFS always felt like an incomplete label to me.

Yes, I crash after exertion.
Yes, sleep doesn’t fix it.
Yes, my body has never functioned the way people expect it to.

But understanding it as dysautonomia finally explains the day-to-day reality of living in a body whose nervous system breaks down so easily.

The only thing that actually helps is pacing — staying within my energy envelope.

I try to live as close to the edge as I can, but carefully. Migraines and tinnitus have become warning signs for me. If I respect those early signals, I can often avoid triggering insomnia, which is far worse than a regular crash and completely throws me off balance.

After 30 years, I’ve finally stopped blaming myself.

That alone has been healing.

I’m sharing this journal entry in case it gives someone else a little more language for their own experience.

And for family members, friends, and doctors: please know that when we keep turning down invitations, or seem withdrawn, or disappear for long stretches of time, it’s not because we don’t want to be around you.

Our energy is extremely limited.

We have to be very careful to avoid crashes.

Even now, I keep a little journal between doctor visits so I can clearly communicate what I’ve been experiencing. If you’re struggling to explain this illness during appointments, writing things down and bringing it with you can be incredibly helpful.

Sometimes understanding does not cure the body.

But it can begin to release the shame.

And after so many years of being misunderstood, that matters.

May 21, 2026