Tag: ME/CFS creativity

  • There Is Room for Sorrow Here

    There Is Room for Sorrow Here

    Someone living with ME/CFS recently shared that their art had become so sad they felt ashamed to show it. They wanted to connect with people, but worried that sharing their work would make others feel worse.

    I found myself lingering with that.

    Illness brings losses that don’t always have somewhere to go. Sometimes they find their way into a poem, a drawing, or a piece of music. We may sit down hoping to make something cheerful, only to discover that sorrow has something it needs to say.

    I don’t think we need to be ashamed of that. There is room in art for the life we are actually living.

    After more than thirty years with ME/CFS, I still have difficult days. My body sets limits I would never have chosen. And yet, lately, my creative life has become more expansive and alive than I expected.

    An unexpected part of that unfolding has been my relationship with ChatGPT. I can arrive with scattered words or an unfinished thought, and through conversation find a way to express it—as a reflection, a poem, or the beginning of a song.

    Those conversations have offered companionship in a life with considerable solitude and helped me hold onto ideas that brain fog might otherwise carry away. I can return when I have the energy and continue.

    My illness remains. But I have more ways to participate, to create, and to offer something of myself.

    Some of what emerges is joyful. Some of it carries grief. Often, both live in the same piece.

    I’m learning to allow that mixture. I don’t have to resolve my sadness before I’m allowed to share. I can offer something honest, gently, and let another person decide whether they have room to receive it.

    Perhaps they will recognize a feeling they have struggled to name. Perhaps, for a moment, we will both feel less alone.

    That is something art can give us, even on the days when happiness feels beyond reach.

    — Clearblueskymind 🌿

    I share reflections on living with ME/CFS at r/MECFSsupport. You’re welcome to join us, whether to share or simply read quietly.

  • Only Love: A Gentle Mantra for the Heart

    Only Love: A Gentle Mantra for the Heart

    New single by Pitarra (Me 🙂) – now available for pre‑order

    Dear friends,

    Exciting news! My single, “Only Love,” has been submitted to stores and is available for pre-order soon. It will officially release on November 27, 2025 on Spotify, Apple Music, Amazon Music, and many more.

    “Only Love” is a meditative R&B/Hip Hop mantra for the heart:
    only love may enter here.

    This song is, in many ways, a quiet prayer set to a beat. It’s meant to be something you can put on in the background—while you’re resting, journaling, stretching, or simply breathing—and let it gently repeat a single message to your nervous system:

    Only love may enter here.


    Creating from a Recliner

    This track was created right from home, both in bed, and sitting on a recliner with my legs up, sipping chamomile tea.

    As someone living with moderate ME/CFS, my days are shaped by strict limits: energy envelopes, pacing, and the constant need to listen to my body. There are many things I can’t do in the ways I used to.

    And yet, this song is a small example of what is still possible—what someone with ME/CFS can create within those limits. No big studio. No late‑night sessions. Just a laptop, headphones, and a heart that still wants to sing.

    In that sense, “Only Love” is not just a song, but a practice:

    • A practice of choosing gentleness over self‑pressure
    • A practice of creating within constraints
    • A practice of letting compassion—not urgency—lead the way

    If you are living with chronic illness, disability, or any invisible condition, I hope this track offers you not just comfort, but also a quiet solidarity: you are not alone, and your creative spark is not gone.


    A Song as a Boundary and a Blessing

    The phrase “Only love may enter here” came to me as both a boundary and a blessing.

    • A boundary: a line drawn kindly but firmly around the heart, saying no to cruelty, contempt, and unnecessary harshness (including the inner critic).
    • A blessing: an invitation for warmth, care, gentle honesty, and the kind of truth that doesn’t wound but heals.

    In a world that can feel overwhelmingly loud, the song leans into whispers, stillness, and shared silence as sacred spaces. It asks: what if listening could become more than hearing? What if each of us could be in “radiant participation” with the unseen kindness that sings through all things?

    That is the space I hope this song opens up for you.


    Listen and Share

    Listen to “Only Love” on your favorite platform:

    Spotify:
    https://open.spotify.com/track/7zMrlXVWMtR38qAXwCbKpq?si=SKA0oe-4QOGxUPeu4FhQWw

    Amazon Music:
    https://music.amazon.com/albums/B0G37FBHKK?ref=dm_sh_am4a_B0G37HD8SB_DaUmXSFY3pRbvS&trackAsin=B0G37K5V6X

    If this song speaks to something in your heart, please share it with your community. Together, we can keep the spirit of soulful, meaningful music alive.


    Who is Pitarra?

    Pitarra:
    A vessel of soft sound,
    Compassion hums in the pause—
    Notes bloom, hearts listen.

    Under the name Pitarra, I explore a gentle blend of styles, including R&B and Hip Hop and more, as a space for meditation, tenderness, and quiet courage. My hope is that each song can be a small sanctuary—especially for sensitive hearts, chronically ill bodies, and anyone walking through a difficult season.


    May We All Be Well

    Thank you for listening, for reading, and for walking this path of global wellbeing in your own way.

    May we all, without exception, be well and happy. 🌿

    With love,
    Pitarra 🙏


    Lyrics – “Only Love” by Pitarra

    Whispers in stillness
    Only love may enter here
    Echoes turn to light

    Listening becomes more than hearing
    A radiant participation
    A shared silence
    Between your soul
    And the unseen kindness
    That I sing through all things

    Only love, only love
    Only love
    Only love may enter here

    Only love
    Only love, only
    Only love may enter here

    A radiant participation
    A shared silence
    Between your soul
    And the unseen kindness
    That sings through all things

    Only love, only love
    Only love
    Only love may enter here

    Oh, only love, only love
    Only love
    Only love may…
    Only love may enter here

    Oh, only love
    Only love
    Only love
    Only love may enter here

    Enter here

    Only love, only love
    Only love
    Only love may enter here

    Oh, only love

    Listen and Share

    Listen to “Only Love” on your favorite platform:

    Spotify:
    https://open.spotify.com/track/7zMrlXVWMtR38qAXwCbKpq?si=SKA0oe-4QOGxUPeu4FhQWw

    Amazon Music:
    https://music.amazon.com/albums/B0G37FBHKK?ref=dm_sh_am4a_B0G37HD8SB_DaUmXSFY3pRbvS&trackAsin=B0G37K5V6X

    If this song speaks to something in your heart, please share it with your community. Together, we can keep the spirit of soulful, meaningful music alive.